{"id":1038,"date":"2024-11-22T00:53:42","date_gmt":"2024-11-22T00:53:42","guid":{"rendered":"https:\/\/momentsunfolded.com\/?p=1038"},"modified":"2024-11-22T00:53:44","modified_gmt":"2024-11-22T00:53:44","slug":"baby-born-with-unusual-syndrome-22-years-later-she-looks-amazing","status":"publish","type":"post","link":"https:\/\/momentsunfolded.com\/archives\/1038","title":{"rendered":"Baby Born With Unusual Syndrome \u2013 22 Years Later She Looks Amazing"},"content":{"rendered":"<header class='\"entry-header\"'>\n<div class='\"entry-meta\"'>Every parent eagerly awaits the arrival of their little one, cherishing the nine-month journey leading to that special moment\u2014the birth. It\u2019s a profound joy to hear the first cries of the newborn as they enter the world. However, for some parents, the birth of their child unfolds in unexpected ways.\n\n<div class='\"entry-content\"'>\n<div class='\"code-block' code-block-1>\n<div id='\"M969837ScriptRootC1654493_07ae0\"'>\n<div id='\"AdskeeperComposite1654493_07ae0\"'>\n<div>\n<div class='\"mgbox' card-media>\n<div class='\"mgline' teaser-21134133 type-w data-i='\"4S8vouZewgHqN86Y4GruO0JEFCveJTIy9L9BAN9R4TKH3NYMeBROtQkaRAwbIBWJODGv4A_QmL3ruLfGIxt1-q0Q6BoUIDA4qP4x5lwgen8*\"' data-observing-start='\"1732236691852\"' data-observing-time='\"1004\"' data-showed='\"1\"'>\n<div class='\"mgline-inner\"'>\n<div class='\"mgbottom_media\"'>\n<div class='\"mgmedia__metrics-value\"'>\n\n\n\n\n\n\n\n\n<p><iframe loading='\"lazy\"' src="%5C%22https:%5C/%5C/www.facebook.com%5C/plugins%5C/post.php?href=https%3A%2F%2Fwww.facebook.com%2Fmary.kish1%2Fposts%2Fpfbid02mMaW2jTPpsA3zUihHEMukbw7jzzdSycyTt1H5pmXvrtwjbuzoD6asg1hcbprs3Cl&amp;show_text=true&amp;width=500%5C%22" width='\"500\"' height='\"741\"' frameborder='\"0\"' scrolling='\"no\"' allowfullscreen='\"allowfullscreen\"' data-origwidth='\"500\"' data-origheight='\"741\"' data-mce-fragment='\"1\"'>\n<div class='\"code-block' code-block-2>\n<div id='\"M969837ScriptRootC1698043_0f320\"'>\n<div id='\"AdskeeperComposite1698043_0f320\"'>\n<div>\n<div class='\"mgbox' card-media>\n<div class='\"mgline' teaser-21207662 type-w data-i='\"4S8vouZewgHqN86Y4GruO7Pq1GyrmSQizOWmT6YkAyLjBASu_WJSEvzRlUNQC1UtMl3W1fCMYA7pKzXbhg7WgbLvOjHs0NVO0RcYc_eNwUk*\"' data-observing-start='\"1732236731750\"' data-observing-time='\"1126\"' data-showed='\"1\"'>\n<div class='\"mgline-inner\"'>\n<div class='\"mgbottom_media\"'>\n<div class='\"mgmedia__metrics-value\"'>\n\n\n\n\n\n\n\n\n<p>A Startling Diagnosis: Hallermann-Streiff Syndrome<br>\nMary and Brad Kish, residing in Illinois, USA, eagerly anticipated the birth of their daughter in the late 1990s. Mary\u2019s pregnancy had been smooth, and the delivery went well.\n</p><div class='\"code-block' code-block-4>\n<div id='\"M969837ScriptRootC1698044_0831c\"'>\n<div id='\"AdskeeperComposite1698044_0831c\"'>\n<div>\n<div class='\"mgbox' card-media>\n<div class='\"mgline' teaser-21407130 type-w data-i='\"4S8vouZewgHqN86Y4GruO9Ub31E2BtceuLQecshIWnvi9_IJqknH5Z9SZlX-vEcaMl3W1fCMYA7pKzXbhg7WgYUZZIEKV7pYJ-1ohKRBAzY*\"' data-observing-start='\"1732236733248\"' data-observing-time='\"1444\"' data-showed='\"1\"'>\n<div class='\"mgline-inner\"'>\n<div class='\"mgbottom_media\"'>\n<div class='\"mgmedia__metrics-value\"'>\n\n\n\n\n\n\n\n\n<p>Yet, as their daughter Michelle opened her eyes for the first time, doctors immediately noticed something unusual. After consulting with a geneticist and extensive research, they diagnosed Michelle with Hallermann-Streiff syndrome\u2014a rare hereditary condition with only 250 documented cases worldwide.\n</p><p><iframe loading='\"lazy\"' src="%5C%22https:%5C/%5C/www.facebook.com%5C/plugins%5C/post.php?href=https%3A%2F%2Fwww.facebook.com%2Fmary.kish1%2Fposts%2Fpfbid03XawyM3HDy4nVQNDKXLZcM5aXkdVd4abu69FVsmQuq84TQ5nBUpyc1jozoWen3oml&amp;show_text=true&amp;width=500%5C%22" width='\"500\"' height='\"645\"' frameborder='\"0\"' scrolling='\"no\"' allowfullscreen='\"allowfullscreen\"' data-origwidth='\"500\"' data-origheight='\"645\"' data-mce-fragment='\"1\"'>\n<p>\u201cNo one had ever seen it in person at Children\u2019s Memorial Hospital, where Michelle was born. When the doctor gave us the diagnosis of Hallermann-Streiff syndrome, my heart sank. I was worried about how we would care for our child with such a rare genetic disorder,\u201d expressed Michelle\u2019s mother to the Daily Mail.\n</p><p>Overcoming Unique Challenges<br>\nMichelle exhibits 26 of the 28 associated symptoms of Hallermann-Streiff syndrome. Although the condition affects only one in every five million people, it presents a range of health issues. Additionally, Michelle also has dwarfism, which means she stands barely taller than her sister\u2019s waist despite being only two years apart in age.\n</p><p>Managing Michelle\u2019s condition requires extensive support, including an electric wheelchair, hearing aid, probe, respirator, and visual aids. Her family has spent considerable time in hospitals due to her illness. Despite being 25 years old, Michelle\u2019s appearance sometimes leads others to mistake her for a child.\n</p><p>\u201cNow a 20-year-old woman, Michelle is incredibly bright and radiates happiness. She is one of the happiest individuals I know,\u201d shared Mary, Michelle\u2019s mother, with the Daily Mail in 2018. She continued,\n</p><p>\u201cShe brings joy into people\u2019s lives, fully aware of her uniqueness but refusing to let it define her.\u201d\n</p><p>A Remarkable Young Woman<br>\nMichelle\u2019s journey, although challenging, showcases her incredible spirit and resilience. She dreams of emulating her older sister and experiencing life\u2019s milestones, including having a boyfriend. While she doesn\u2019t mind her partner\u2019s height, she hopes he has long hair. Additionally, Michelle aspires to become a doctor\u2014an ambitious goal she is determined to pursue.\n</p><p><img loading='\"lazy\"' decoding='\"async\"' class='\"alignnone' size-medium wp-image-12668 src="%5C%22https:%5C/%5C/todaynews22h.com%5C/wp-content%5C/uploads%5C/2024%5C/11%5C/kish3-300x176.jpeg%5C%22" alt='\"\"' width='\"300\"' height='\"176\"'>\n</p><p>Let\u2019s come together and celebrate Michelle\u2019s indomitable spirit. Share her story and join us in wishing her all the best as she continues to inspire others with her remarkable journey.\n\n","protected":false},"excerpt":{"rendered":"</p><p>Every parent eagerly awaits the arrival of their little one, cherishing the nine-month journey leading to that special moment\u2014the birth. It\u2019s a profound joy to hear the first cries of the newborn as they enter the world. However, for some parents, the birth of their child unfolds in unexpected ways. A Startling Diagnosis: Hallermann-Streiff Syndrome [&hellip;]\n","protected":false},"author":2,"featured_media":1039,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-1038","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-uncategorized"],"_links":{"self":[{"href":"https:\/\/momentsunfolded.com\/wp-json\/wp\/v2\/posts\/1038","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/momentsunfolded.com\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/momentsunfolded.com\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/momentsunfolded.com\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/momentsunfolded.com\/wp-json\/wp\/v2\/comments?post=1038"}],"version-history":[{"count":1,"href":"https:\/\/momentsunfolded.com\/wp-json\/wp\/v2\/posts\/1038\/revisions"}],"predecessor-version":[{"id":1040,"href":"https:\/\/momentsunfolded.com\/wp-json\/wp\/v2\/posts\/1038\/revisions\/1040"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/momentsunfolded.com\/wp-json\/wp\/v2\/media\/1039"}],"wp:attachment":[{"href":"https:\/\/momentsunfolded.com\/wp-json\/wp\/v2\/media?parent=1038"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/momentsunfolded.com\/wp-json\/wp\/v2\/categories?post=1038"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/momentsunfolded.com\/wp-json\/wp\/v2\/tags?post=1038"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}</p></iframe></p></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></iframe></p></div></div></div></div></div></div></div></div></div></div></div></header>